Our Life with PNES

My fiance, Adam, and I, are high school sweethearts. We've been together for 6 years and are stronger then ever. You can say it was love at first sight, or hello, which is what he said and I just sat there and smiled awkwardly because, well, I'm me, socially awkward. At that time, I was best friends with his sister, I emphasize was because our friendship broke apart because of my relationship. That's a whole other long story though, and we don't have enough time for that.

When Adam and I got together, he was originally she. Adam was Alisha when we first met, and about a year ago was when he openly admitted that he was transgender. He was a man stuck in a woman's body. It was very scary at first, but I am proud of his bravery in becoming who he truly is.

At this time I had no idea of my sexuality. Being raised in religion my whole life, being gay was something that was never brought up, there wasn't a reason to. He brought all these feelings I never knew I had, to the surface. You could say my parents were not thrilled. Neither of our families were fond of the fact that we were two women in a relationship.

It wasn't easy. Being that this was all very new to me, my emotions were like a rollercoaster and I had no idea what I wanted. My mind was telling me to follow my heart, but my family had other plans, though neither of them tried to break us up, I did that. With my emotions running wild, it led to me breaking his heart over and over before finally realizing that this is what I truly wanted, to hell with what other people thought.

Adam and I grew closer, and we were off and on for a few years. I graduated high school and immediately moved in with him. Things were great, we had a wonderful apartment, great families and friends, good jobs, you could say things were picture perfect for us. Until we had this one argument and he had a seizure. You read that right, a seizure. It was by far the scariest moment of my life, I was bawling like a baby, not knowing what to do. But he came to and everything was fine, we thought nothing of it, we moved on.

Some months later, things were going down hill with Adam emotionally and I needed help. I suggested getting a few tests done, and he agreed. Depression, anxiety, bi-polar, we were getting results, but he was upset with what he found. His emotions and actions got worse, along with the every so often seizure.

We mentioned the seizures, and they recommened that we see a neurologist and do some further testing in that specific field. He had the EEG done and the tests came back telling us that he had mild epilepsy.

Ok, that's a big one. We both needed time to process this new information, but we knew this was something that we could handle together. They immediately put him on an antiseizure medication, which helped his mood and his seizures. They helped him calm down and breathe through whatever he was going through. This medication seemed to be doing the trick and we were happy, our lives were getting back on track. Apparently, someone had different plans, and just like that, 8-10 seizures a day, out of the blue. After numerous medication and doctors visits, he was transferred to a much better hospital where they monitored him for three days. Little did we know that he was actually diagnosed with the wrong disorder.